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00:00In many ways it's been it was alarming and shocking as it always is when you get the diagnosis and
00:06you know there's a degree of trauma for the person concerned and I know my mother and my dad were
00:11both very shocked to hear that this was the case and started to fear the worst about the sort of
00:18life she was going to have. Six years later actually she's got quite a good quality of life
00:23and that is really a product of what I'm arguing for right across the NHS early and accurate
00:30diagnosis with the family members all involved and we you know you all work together as a team
00:36if you've got a loving and close family which I'm fortunate to have to make sure that person
00:41really is looked after and I think it's partly that partly the right drugs the fact that she
00:47lives in a good setting she's able to be at home with care on hand and with my dad supporting my
00:5293 year old dad flying the flag and helping where he can we've been able to I think manage it
00:59in as good a way as we possibly could so many other people who are on this journey and it is
01:07a difficult journey for the whole family aren't so fortunate either don't have the means to support
01:12someone at home weren't fortunate enough to have an early and accurate diagnosis and now have very
01:18limited choice about the type of setting in which their loved one will live the rest of their life
01:24so there's there's both positive and a warning for all of us in the way in which my mother's
01:30case was handled.