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00:00I love you. You just make sure you have sweet dreams, okay? Best ever. I love you. We're
00:10just outside the door. You're in great hands. You're the best. All right? I love you, baby
00:16girl. Okay, baby. Family at the Ronald McDonald House, it's dinner time, so come on down and
00:37have dinner in the kitchen. We have been at the Ronald McDonald House, as of last week,
00:45two years. There's so many different families that come and go here all the time. You're
00:49always wondering, one day it's going to be my time to leave here. But we couldn't do
00:53what we do every day with Katie without being here. That was when Katie was a junior. That
00:59was sometime her senior year. That was the summer before the accident. Katie was our
01:07old soul kid. She'd just soon stay at home, be with family, watch 20 rounds of Grey's
01:14Anatomy. Katie's the type of kid that trusted to a fault. It's nearing the end of her senior
01:22year, and she had a lot on her, as a lot of seniors in high school do. March 25th, 2014,
01:31that morning she'd been hurt by something that had happened within a friendship. All
01:37I saw was her legs, and then I called my husband. I could tell she was disturbed by what she
01:42said, Rob, Katie's gone. I said, gone? What do you mean gone? And she said she shot herself.
01:53One doctor has said that this is probably the worst wound he'd ever seen.
02:07You should have had her over here this morning when you were on your bike.
02:11Yeah, that would have been good. Maggie always wanted to get you on your bike, and never
02:16did. Every time she came through. Okay, here's your spoon. Thank you. You're welcome.
02:27Alright. A feast for the kings.
02:34Can you try the soup, Katie? We're getting ready for Katie's face transplant. We go to
02:42rehabs during the week, and that's with all these doctor's appointments. Our weeks are
02:47pretty packed Monday through Friday.
02:57Katie, neurologically, she's all there. It's just a matter of sorting through the files
03:02of your brain.
03:09Yes, go lengthwise. It's going to make it easier for you to fold, okay?
03:17She gets to these episodes where she kind of just stops, you know what I mean?
03:22No, don't be sorry, Katie.
03:25Yep, right there, where your thumb is. Where your thumb is. Nope, that's not it.
03:30That's not it, Katie. To the right. Yep.
03:33We've had our moments where you fall apart, like a house of cards. But I think when you
03:38go through something like this, to the best of your ability, there's not much you take
03:43for granted anymore.
03:45Doing okay? I'm okay.
03:48How do you see things now?
04:00You have to go through all this.
04:06It's hard to really describe the importance of a face, but being able to kiss, being able
04:11to show emotion, those are basic parts that we take for granted every day.
04:18We project to the people in front of us, and then they project back. So you don't get back
04:22the feedback that you normally would expect. It could be sadness, it could be anger, it
04:27could be love, it could be affection.
04:31We've been very surprised by the remarkable recovery she's made. She's by far not done,
04:37and she has a long way to go. But in this case, we're talking about someone who's had
04:41the most extensive trauma imaginable. We have to go very far beyond what we can do with
04:47conventional techniques or prosthetics, and only a face transplant can do that.
04:52We always have a team ready, but once we listed her, we came together as a group.
04:58There must have been over 50 or 60 healthcare givers from every major area of medicine
05:04that would deal with her. We then did many practice runs, and we continue to do them
05:09in the cadaver lab. And as much as we think we know exactly what we want to do, every
05:14time something new comes up, some other idea comes up.
05:18Since March 18th, she's been on the official face transplant list.
05:23Every day, you kind of wake up and you think, this could be the day. And then you go through
05:28times where there's not a call or anything, and you kind of get a little discouraged and
05:33disappointed. But with hope and faith, we're going to get through this.
05:39We're very close. Like very, very close.
05:41call or anything and you kind of get a little discouraged and disappointed, but
05:46with hope and anticipation we know it'll happen.
05:51Oh, no pain, yay.
05:54Does that mean we sleep all night?
05:57Yay!
06:05We were very close, like very, very close.
06:08Was it close to her age?
06:10It was perfect.
06:11The problem was...
06:12Perfect, oh my goodness.
06:13I know.
06:14The problem was there was some serology that would have been a no-go for her.
06:19We couldn't take the risk anymore, so that was it.
06:21It'll happen next month, two, three, four.
06:24Probably never made it, I guess.
06:26You have really warm hands.
06:28Very nice.
06:29That's it.
06:30Warm hands, warm heart.
06:31You do have a warm heart, that is true.
06:33Anything specifically, you guys, information you need?
06:35Right now?
06:36No.
06:37You think of anything?
06:38Donors.
06:39That's true.
06:40Yeah, that's really important.
06:41Donor, yeah.
06:42Yeah, yeah.
06:43Can't think of anything right now.
06:44Well, I want one for you too, but I want the right donor for you.
06:47Okay, that's the main thing.
06:48I want to see you, hopefully, next time in the operating room.
06:50That's the goal.
06:51Yeah.
06:52Okay?
06:57We got that call.
06:58It's a go.
06:59You need to be here tonight at 7 o'clock.
07:04My bestie's getting a face.
07:07Good to go?
07:09Showtime.
07:11Okay.
07:13Okay.
07:16Yeah, we're going to start with the donor tomorrow at about 7.
07:19Okay.
07:20And I think Katie will probably get down there by about 9 a.m.
07:22They're still envisioning 24 to 36 hour time.
07:24Yeah, I imagine.
07:25I mean, I think, you know, I'm thinking in my head 30 hours.
07:28So, right between that time frame that you talked about.
07:31Are you having any second thoughts?
07:33Second thoughts.
07:54We can cut it here initially.
07:56But on the donor, you cut it here.
07:58Cut it symmetrically.
08:00Why don't we just defibrillize it and leave all of them?
08:02That's what I'm saying.
08:03We're going to not go.
08:11What's up, Shorty?
08:12Diane and Debra.
08:13Okay.
08:14Okay.
08:15And then Kelsey's still in here.
08:16You're all right?
08:17Okay.
08:18Okay.
08:20The main goal is this.
08:24That's the main goal.
08:26We're going to do a little bit up here,
08:28but it's not a major part of what we want to do.
08:30Thank you for your mercies that are new every day.
08:33We thank you for this opportunity.
08:35We thank you for this day.
08:36Amen.
08:43I like this work.
08:45I'm going to ask doctors if I can walk down with you.
08:51You've come a long way.
09:09In order to get to the tissues and to create space for what we're transplanting,
09:15all this has to be removed, including bone here, bone here, bone here, bone here.
09:20And we need access to it while still preserving things that make her still look like Katie.
09:26There's always the risk that in the middle of working to prepare Katie,
09:31we could have to stop and be left with virtually nothing
09:35because the donor could become unstable.
09:42Katie said to me, if something happens to me during the transplant,
09:46I don't want you to be upset.
09:48I was probably a lot more nervous than she was.
09:52Once we make a decision, there's no going back.
09:57No matter how much planning you do.
09:59And we actually got three-dimensional CTs made of the donor and of Katie
10:03to help us figure this out.
10:05And despite all that, it didn't matter
10:07because in some ways Katie's face was longer, the donor's face was wider.
10:12And so we had to make decisions.
10:14Where are we going to make it perfect and where, as a result, will not be perfect?
10:22♪♪♪
10:28I kept waiting for them to come out and say, like,
10:31we've got this problem, we've got that.
10:35This is not what we planned.
10:40It was near midnight when we brought the donor tissues in.
10:44♪♪♪
10:53At that point, we have to make a decision.
10:56♪♪♪
11:04You know, the more that we think about what she would want,
11:07there lies the answer.
11:09Not just now, but 5 years, 10 years, 20 years, 40 years from now.
11:13Do you want to do the gut check again, the gut feeling?
11:25♪♪♪
11:40Applause
11:43Bless her
11:50Thanks for joining us, everyone.
11:53Great hours.
11:57Hi, how are you?
11:58I'm good thanks.
11:59Okay.
12:01All right.
12:10Katie? I know you're out of it.
12:41You look good, Chris.
12:49She'll be in the hospital for at least a month.
12:52But we won't expect any nerve recovery for probably a minimum of six months.
12:58So it's going to be a long recovery.
13:00I would think at least two years before we see some true stability in her.
13:10The last three months have been long and had some bumpy days.
13:26This charge is like you are transitioning from one aspect of care to another.
13:35You ready? Head up to the desk and say goodbye.
13:38Hold on. That way.
13:54She's a Kardashian fan now because of Becca.
13:58There you go. I couldn't do a longer movie.
14:03I love you.
14:06We did form a lot of relationships with them because they've watched her for three years.
14:18Dr. Gesson said the next several months Katie will be a professional patient.
14:24Lots of rehab, lots of strength training, doctor's appointments, trying to get all her meds settled,
14:30which ones she'll have to stay on.
14:35You just know in your head it's going to be busy.
14:43Dr. Gesson said it would take six months to a year to get her smile back.
14:55The sensation is stronger there?
15:00It really is about marching towards little by little, getting back into the arena of life.
15:08Not back as the way it used to be because nothing will ever be the same again.
15:12Katie, can you hold your head back so it makes it easier? Hold my hand. Hold my hand, son.
15:16I know it hurts, but it's not going to hurt in a few weeks.
15:20We're allowed to write a letter to the donor and their family, and if they would like to receive it,
15:26then they can receive it. If not, they just keep it at the hospital, but we do plan on writing a letter.
15:32It's totally up to them, and we totally understand, but we're just very grateful.
15:43Adria was, we didn't always get along, you know how it is with your family,
15:49but we had been able to spend a time together in a year or six months before she passed away.
15:58If Adria was willing to donate her organs, you know, why would she need a face?
16:06You know, I still wrestle with that every now and then. It was something I didn't expect,
16:12and so I thought about it, prayed about it.
16:16This is the right thing to do so someone else can have maybe a better life.
16:24Yeah, that's what made my decision.
16:29I knew it was going to take someone special to give their daughters or granddaughters or wives
16:36a face so someone else could live.
16:41You need to be nervous. I mean, absolutely.
16:44I saw their grandma out in the driveway. They're making them wait outside until the appointment.
16:48It's all good.
16:51Just relax.
16:55And then afterwards we'll go out for pizza and beer.
17:06Hi. How are you?
17:11Who is this lovely person?
17:16Hi. I'm Sandra.
17:21How are you?
17:24It's so good to meet you.
17:28You look beautiful.
17:44It's your gift.
17:50It is.
17:53I'm just glad.
17:55And your granddaughter was beautiful.
17:57She was a beautiful girl.
17:59I think that must have been, it was not long ago.
18:03Really?
18:04It was a very recent picture.
18:07We thank you, Lord God, for all that you've done.
18:10We ask your blessing upon this.
18:13In Jesus' name, amen.
18:16Amen.
18:18Praise the Lord.
18:27Hello.
18:28Hello.
18:29How are you?
18:30Do you see any change?
18:42Her eye function is unbelievable.
18:45Close your eyes for us.
18:47Smile.
18:48She couldn't do any of that a month ago.
18:50It took almost two years on the other patient,
18:52so I'm really excited about what another month is going to be from now.
18:56That's great.
18:59Nice.
19:00I mean, isn't it amazing?
19:01You've got to wait a year, and then all of a sudden it starts rolling out.
19:04Little success after little success.
19:12Want a drink of something?
19:14It's for a while.
19:15It's for a while.
19:16That's true.
19:21It's been long, but it's been fast.
19:33Were you sore last time?
19:34I was sore.
19:35Where?
19:36Right here.
19:37Booyah.
19:38Right here.
19:39Booyah.
19:40That's where we want it to be sore.
19:41Sometimes, some angles, some moments, some days,
19:43you really appreciate how much has changed since the transplant almost a year ago.
19:59Do you feel like it belongs to you now, your new lips and your new nose?
20:12Oh, my God.
20:13Oh.
20:14Oh, my God.
20:15That's amazing.
20:16We're always telling people about you.
20:17Oh, no.
20:18No, no.
20:19No, seriously.
20:20We wouldn't be where she is today without you.
20:21Right now, Rob's trying to seek employment.
20:22Yeah, trying to get back into teaching for the fall.
20:23It would help us get back into reality.
20:24Yeah.
20:41Take care.
20:45If you live long enough, you're going to walk through something.
20:47Maybe not to this degree, but you're going to walk through something,
20:51and it's going to be painful, and you're going to have very little control over it.
20:56But, you know, you have a choice to make, whether you're going to hold on to it
21:01or use it and let it change you.
21:06You really have to appreciate life as a journey
21:09and recognize life as a learning curve.
21:13Having a transplant is not you have a transplant and you go back to living.
21:18It's an exchange.
21:20It's a different life, and she will always have to remember,
21:23I can never not remember to take my meds.
21:27But it is an exchange that I gladly welcome.
21:31You gladly welcome it.
21:34You gladly welcome it.
21:36Yeah, but we have such a long ways to go.
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